When Braden first started hockey this year, he couldn't even stand up on his skates. He had some VERY dedicated coaches that have coached him in Baseball so they know about him and his Autism. Because they really wanted him to feel a part of a team, they gave him so much 2-1 attention on the ice :) These coaches worked so hard just to get him to skate forward and the hardest thing to teach him was to skate backwards!! But, as the season has gone on, Braden has become an amazing hockey player!!! He plays right wing and is as good as the rest of the kids that have been playing for years. He makes me sooo proud!!! Braden will get home from school, pack up his hockey stick, puck and helmet and head to the outdoor rink across the street and spend HOURS just practising everything :) I would say that hockey has become his new obsession!! For years, Braden only cared about coins. It started out with a coin from every province, then it was a coin from every state and then coins and paper money from all over the world!! He has a beautiful collection and still really enjoys looking at them all..but Hockey has taken over his very unique and hard to understand mind. I just love to watch him play and he enjoys being around the other kids on his team :) Us Autism mom's understand how hard it is to watch our kids struggle to have just one single friend, but now Braden has 11 friends and they all have 1 thing in common..Braden's obsession..HOCKEY!!!
ok..mommy brag time is done ...LOL
But now on to the real reason I was writing this blog...
I have been having a LOT of trouble with the school and getting Kyle the help and funding for an EA since last year. Well, he has been denied funding AGAIN.
Now remember that Kyle is diagnosed with Autism and multiple other disabilities. He has global developmental delay which means that he is delayed is ALL aspects of daily living. Because of these 2 disabilities combined, Kyle (6yrs old) has just learnt to dress himself and can now put on his own boots :) With reminders he will sometimes look both ways when crossing the street and will sometimes go to the bathroom at home with reminders and rewards..he IS making progress thanks to Bella, his Autism service dog who helps him with simple things like reminding him to close the fridge door :)
But my real problem is with his school and how their taking care of him..or how their NOT taking care of him. Kyle is not even close to being toilet trained and this is very normal with Autism. on Kyle's very first day of school, I picked him up for lunch and when I arrived to get him; he was sitting in class with a diaper that was soaked with urine and feces so bad that it had soaked through his pants. He had been sitting in this for so long that his bottom and thigh's were blistered down to his knee's. I took him home to clean him up, but the pain was so bad that I couldn't clean him. I put him into a shower/bath to try to clean him and he sat/ stood there screaming and crying from the pain. I was sooo mad that I didn't know what to do!!! By the end of lunch time I had made the very tough decision to send him back to school so I could make the call's and emails to address this situation. I picked him up 1.5 hours later and he didn't go back to school until a full meeting was called and a solution was made to address his toileting needs. Well, his needs STILL are NOT being met!!
There has been many times between then and now that this same situation has come up but, this week, I have had enough!! Just one too many time's that this has happened. I picked Kyle up at 12:15 for his EEG on Friday to find him sitting in class with another poopy diaper that no adult had noticed!! I approached the resource teacher about this problem AGAIN and the response I go was "the person that normally takes him on his bathroom break has been away this week" I said ok, but is there not someone else that is taking him on his breaks? She responds with "Yes, but he won't go to the bathroom for them, so there's not much we can do about that" I wasn't ready to have a personal argument with her in the hallway, so I said "ok" (with a little bit of attitude) I knew I was going to get the same line that I always get from them and I knew it wasn't worth it.
I did contact my lawyer that is handling the legal case with them about denying Bella into the school, just to make notes of what happened. I tried my CSS worker, but she is away till Monday and tried our CFS worker but she left early on Friday. So, what could I do on the weekend?? well, I called a friend who is also an Autism mommy/warrior to give me some advice and an ear to listen to me. She is an AMAZING woman that has a beautiful heart that is willing to help anyone who is in need :)
Thank you ;) you know who you are!!
Not only did I talk to her but I also sent out an email to try to have my concerns heard. And here it is